Who are Dysphagia Matters?
Dysphagia Matters are specialist speech therapists partnered with professional chefs and dieticians working to train healthcare teams to help people with swallowing difficulties (dysphagia). You can find out more about what we do at www.dysphagiamatters.com.
Being frail or having a disability should not be a barrier to enjoying good, safe and nutritious food. We want to raise awareness and understanding of what it is like to live with swallowing problems to develop practical solutions to improve the quality of life of sufferers.
Dysphagia Chronicles is a new blog to enable people to share their stories and personal experiences to help us in this goal. I have added my story to get the ball rolling. My name is Emma and I live with a condition called Friedreich’s Ataxia (FA). I finished my paid employment some years ago due to my disability, however, I volunteer as an Admin Assistant for Dysphagia Matters as well as being an active blogger in my spare time.
This initiative was launched on 6 March 2017 to support European Swallowing Awareness Day (see Twitter #swallowaware2017).
Guidelines for volunteers creating posts for use on our blog page
Using your name and photograph
Any blog post that you write for us will be attributed to you, unless you would prefer to remain anonymous – please let us know either way. If you have a photograph of yourself that you are happy for us to use, please email it to us along with your blog. If you would prefer your personal image not to be used, we can find another image to illustrate the blog, or you are welcome to share one.
Content and tone
We would like your blog post to be an opportunity for you to share your personal experience of living with a swallowing difficulty. Don’t worry about writing formally. We want the blog post to sound like a real person, written in your own personal style. Most importantly, we want to know what impact your swallowing difficulty has on your life and how you deal with this.
Language to use
If you have a disability and are writing about this, please refer to disabled and non-disabled people (rather than ‘able-bodied’).
Please aim for a maximum of 750 words if you can. Your blog may be edited for length, clarity and to comply with our terminology guidelines. Any edits will be approved by you.
Your blog will be published on the Dysphagia Chronicles page and shared via Facebook and Twitter. We will notify you once it has been published so you can help us to share your post.
If you have any questions, please contact me by email at firstname.lastname@example.org. You can also check out my website (http://adventuresofpom.blogspot.co.uk/) and Facebook page to find out more about me (@adventuresofpom)
Thank you for volunteering to write for us, we look forward to reading your story.